CDC

rfk-jr.‘s-bloodbath-at-hhs:-blowback-grows-as-losses-become-clearer

RFK Jr.‘s bloodbath at HHS: Blowback grows as losses become clearer

Last week, Health Secretary and anti-vaccine advocate Robert F. Kennedy Jr. announced the Trump administration would hack off nearly a quarter of employees at the Department of Health and Human Services, which oversees critical agencies including the Food and Drug Administration (FDA), the Centers for Disease Control and Prevention (CDC), the National Institutes of Health (NIH), and the Centers for Medicare and Medicaid Services (CMS).

The downsizing includes pushing out about 10,000 full-time employees through early retirements, deferred resignations, and other efforts. Another 10,000 will be laid off in a brutal restructuring, bringing the total HHS workforce from 82,000 to 62,000.

“This will be a painful period,” Kennedy said in a video announcement last week. Early yesterday morning, the pain began.

It begins

At the FDA—which will lose 3,500 employees, about 19 percent of staff—some employees learned they were being laid off from security guards after their badges no longer worked when they showed up to their offices, according to Stat. At CMS—which will lose 300 employees, about 4 percent—laid-off employees were instructed to file any discrimination complaints they may have with Anita Pinder, identified as the director of CMS’s Office of Equal Opportunity and Civil Rights. However, Pinder died last year, The Washington Post noted.

At the NIH—which is set to lose 1,200 employees, about 6 percent—new director Jay Bhattacharya sent an email to staff saying he would implement new policies “humanely,” while calling the layoffs a “significant reduction.” Five NIH institute directors and at least two other senior leaders have been ousted, in addition to hundreds of lower-level employees. Bhattacharya wrote that the remaining staff will have to find new ways to carry out “key NIH administrative functions, including communications, legislative affairs, procurement, and human resources.”

At CDC—which will lose 2,400 employees, about 18 percent—the cuts slashed employees working in chronic disease prevention, sexually transmitted diseases, HIV, tuberculosis, global health, environmental health, occupational safety and health, maternal and child health, birth defects, violence prevention, health equity, communications, and science policy.

Some leaders and workers at the CDC and NIH were reportedly reassigned or offered transfers to work at the Indian Health Services (IHS), an HHS division that provides medical and health services to Native American tribes. The transfers, which could require employees to move to a remote branch, are seen as another way to force workers out.

RFK Jr.‘s bloodbath at HHS: Blowback grows as losses become clearer Read More »

the-cdc-buried-a-measles-forecast-that-stressed-the-need-for-vaccinations

The CDC buried a measles forecast that stressed the need for vaccinations

ProPublica is a Pulitzer Prize-winning investigative newsroom. Sign up for The Big Story newsletter to receive stories like this one in your inbox.

Leaders at the Centers for Disease Control and Prevention ordered staff this week not to release their experts’ assessment that found the risk of catching measles is high in areas near outbreaks where vaccination rates are lagging, according to internal records reviewed by ProPublica.

In an aborted plan to roll out the news, the agency would have emphasized the importance of vaccinating people against the highly contagious and potentially deadly disease that has spread to 19 states, the records show.

A CDC spokesperson told ProPublica in a written statement that the agency decided against releasing the assessment “because it does not say anything that the public doesn’t already know.” She added that the CDC continues to recommend vaccines as “the best way to protect against measles.”

But what the nation’s top public health agency said next shows a shift in its long-standing messaging about vaccines, a sign that it may be falling in line under Health and Human Services Secretary Robert F. Kennedy Jr., a longtime critic of vaccines:

“The decision to vaccinate is a personal one,” the statement said, echoing a line from a column Kennedy wrote for the Fox News website. “People should consult with their healthcare provider to understand their options to get a vaccine and should be informed about the potential risks and benefits associated with vaccines.”

ProPublica shared the new CDC statement about personal choice and risk with Jennifer Nuzzo, director of the Pandemic Center at Brown University School of Public Health. To her, the shift in messaging, and the squelching of this routine announcement, is alarming.

“I’m a bit stunned by that language,” Nuzzo said. “No vaccine is without risk, but that makes it sound like it’s a very active coin toss of a decision. We’ve already had more cases of measles in 2025 than we had in 2024, and it’s spread to multiple states. It is not a coin toss at this point.”

For many years, the CDC hasn’t minced words on vaccines. It promoted them with confidence. One campaign was called “Get My Flu Shot.” The agency’s website told medical providers they play a critical role in helping parents choose vaccines for their children: “Instead of saying ‘What do you want to do about shots?,’ say ‘Your child needs three shots today.’”

Nuzzo wishes the CDC’s forecasters would put out more details of their data and evidence on the spread of measles, not less. “The growing scale and severity of this measles outbreak and the urgent need for more data to guide the response underscores why we need a fully staffed and functional CDC and more resources for state and local health departments,” she said.

Kennedy’s agency oversees the CDC and on Thursday announced it was poised to eliminate 2,400 jobs there.

When asked what role, if any, Kennedy played in the decision to not release the risk assessment, HHS’s communications director said the aborted announcement “was part of an ongoing process to improve communication processes—nothing more, nothing less.” The CDC, he reiterated, continues to recommend vaccination “as the best way to protect against measles.”

“Secretary Kennedy believes that the decision to vaccinate is a personal one and that people should consult with their healthcare provider to understand their options to get a vaccine,” Andrew G. Nixon said. “It is important that the American people have radical transparency and be informed to make personal healthcare decisions.”

Responding to questions about criticism of the decision among some CDC staff, Nixon wrote, “Some individuals at the CDC seem more interested in protecting their own status or agenda rather than aligning with this Administration and the true mission of public health.”

The CDC’s risk assessment was carried out by its Center for Forecasting and Outbreak Analytics, which relied, in part, on new disease data from the outbreak in Texas. The CDC created the center to address a major shortcoming laid bare during the COVID-19 pandemic. It functions like a National Weather Service for infectious diseases, harnessing data and expertise to predict the course of outbreaks like a meteorologist warns of storms.

Other risk assessments by the center have been posted by the CDC even though their conclusions might seem obvious.

In late February, for example, forecasters analyzing the spread of H5N1 bird flu said people who come “in contact with potentially infected animals or contaminated surfaces or fluids” faced a moderate to high risk of contracting the disease. The risk to the general US population, they said, was low.

In the case of the measles assessment, modelers at the center determined the risk of the disease for the general public in the US is low, but they found the risk is high in communities with low vaccination rates that are near outbreaks or share close social ties to those areas with outbreaks. The CDC had moderate confidence in the assessment, according to an internal Q&A that explained the findings. The agency, it said, lacks detailed data about the onset of the illness for all patients in West Texas and is still learning about the vaccination rates in affected communities as well as travel and social contact among those infected. (The H5N1 assessment was also made with moderate confidence.)

The internal plan to roll out the news of the forecast called for the expert physician who’s leading the CDC’s response to measles to be the chief spokesperson answering questions. “It is important to note that at local levels, vaccine coverage rates may vary considerably, and pockets of unvaccinated people can exist even in areas with high vaccination coverage overall,” the plan said. “The best way to protect against measles is to get the measles, mumps, and rubella (MMR) vaccine.”

This week, though, as the number of confirmed cases rose to 483, more than 30 agency staff were told in an email that after a discussion in the CDC director’s office, “leadership does not want to pursue putting this on the website.”

The cancellation was “not normal at all,” said a CDC staff member who spoke anonymously for fear of reprisal with layoffs looming. “I’ve never seen a rollout plan that was canceled at that far along in the process.”

Anxiety among CDC staff has been building over whether the agency will bend its public health messages to match those of Kennedy, a lawyer who founded an anti-vaccine group and referred clients to a law firm suing a vaccine manufacturer.

During Kennedy’s first week on the job, HHS halted the CDC campaign that encouraged people to get flu shots during a ferocious flu season. On the night that the Trump administration began firing probationary employees across the federal government, some key CDC flu webpages were taken down. Remnants of some of the campaign webpages were restored after NPR reported this.

But some at the agency felt like the new leadership had sent a message loud and clear: When next to nobody was paying attention, long-standing public health messages could be silenced.

On the day in February that the world learned that an unvaccinated child had died of measles in Texas, the first such death in the U.S. since 2015, the HHS secretary downplayed the seriousness of the outbreak. “We have measles outbreaks every year,” he said at a cabinet meeting with President Donald Trump.

In an interview on Fox News this month, Kennedy championed doctors in Texas who he said were treating measles with a steroid, an antibiotic and cod liver oil, a supplement that is high in vitamin A. “They’re seeing what they describe as almost miraculous and instantaneous recovery from that,” Kennedy said.

As parents near the outbreak in Texas stocked up on vitamin A supplements, doctors there raced to assure parents that only vaccination, not the vitamin, can prevent measles.

Still, the CDC added an entry on Vitamin A to its measles website for clinicians.

On Wednesday, CNN reported that several hospitalized children in Lubbock, Texas, had abnormal liver function, a likely sign of toxicity from too much vitamin A.

Texas health officials also said that the Trump administration’s decision to rescind $11 billion in pandemic-related grants across the country will hinder their ability to respond to the growing outbreak, according to The Texas Tribune.

Measles is among the most contagious diseases and can be dangerous. About 20 percent of unvaccinated people who get measles wind up in the hospital. And nearly 1 to 3 of every 1,000 children with measles will die from respiratory and neurologic complications. The virus can linger in the air for two hours after an infected person has left an area, and patients can spread measles before they even know they have it.

This week Amtrak said it was notifying customers that they may have been exposed to the disease this month when a passenger with measles rode one of its trains from New York City to Washington, DC.

The CDC buried a measles forecast that stressed the need for vaccinations Read More »

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RFK Jr. claws back $11.4B in CDC funding amid wave of top-level departures

Those departures follow Kevin Griffis, head of the CDC’s office of communications, who left last week; Robin Bailey, the agency’s chief operating officer, left late last month; and Nirav Shah, a former CDC principal deputy director.

Pulled funding

Meanwhile, NBC News reported this afternoon that the Department of Health and Human Services (HHS) is pulling back $11.4 billion in funding from the agency, which it allocated to state and local health departments as well as partners.

NBC reported that the funds were largely used for COVID-19 testing and vaccination, and to support community health workers and initiatives that address pandemic health disparities among high-risk and underserved populations, such as rural communities and minority populations. The funds also supported global COVID-19 projects.

“The COVID-19 pandemic is over, and HHS will no longer waste billions of taxpayer dollars responding to a non-existent pandemic that Americans moved on from years ago,” HHS Director of Communications Andrew Nixon said in a statement. “HHS is prioritizing funding projects that will deliver on President Trump’s mandate to address our chronic disease epidemic and Make America Healthy Again.”

State health departments told NBC News that they’re still evaluating the impact of the withdrawn funding. On Monday, some grantees received notices that read: “Now that the pandemic is over, the grants and cooperative agreements are no longer necessary as their limited purpose has run out.”

Since the public health emergency for COVID-19 was declared over in the US on May 11, 2023, over 92,000 Americans died from the pandemic virus, according to CDC data. In total, the pandemic killed over 1.2 million in the US.

RFK Jr. claws back $11.4B in CDC funding amid wave of top-level departures Read More »

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US measles outlook is so bad health experts call for updating vaccine guidance

With measles declared eliminated from the US in 2000 and national herd immunity strong, health experts have recommended that American children get two doses of the Measles, Mumps, and Rubella (MMR) vaccine—the first between the ages of 12 and 15 months and the second between the ages of 4 and 6 years, before they start school.

Before 12 months, vulnerable infants in the US have been protected in part by maternal antibodies early in infancy as well as the immunity of the people surrounding them. But if they travel to a place where population immunity is unreliable, experts recommend that infants ages 6 to 11 months get an early dose—then follow it up with the standard two doses at the standard times, bringing the total to three doses.

The reason they would need three—and the reason experts typically recommend waiting until 12 months—is because the maternal antibodies infants carry can interfere with the vaccine response, preventing the immune system from mounting long-lasting protection. Still, the early dose provides boosted protection in that 6-to-11-month interval.

In the past, this early, extra dose was recommended for infants traveling internationally—to countries that hadn’t achieved America’s enviable level of herd immunity and were vulnerable to outbreaks. But now, with US vaccination rates slipping, herd immunity becoming spotty, cases rising by the day, and outbreaks simmering in multiple states, the US is no longer different from far-off places that struggle with the extremely infectious virus.

In an article published today in JAMA, prominent health experts—including former Centers for Disease Control and Prevention Director Rochelle Walensky—call for the US to update its MMR recommendations to include the early, extra dose for infants who are not only traveling abroad, but domestically, to any areas where measles is a concern.

“With some local immunization levels inadequate to avert outbreaks and ongoing disease spread in various regions of the country, a dichotomy between domestic and international travel is not appropriate,” the experts write. “For many travel itineraries, there may even be a higher risk of measles exposure at the US point of departure than at the international destinations.”

Vaccinating at-risk infants early is critical to their own health—as well as the people around them, the experts note. “[I]nfants younger than one year face a heightened risk of severe measles-related complications such as pneumonia, encephalitis, and death. Younger infants are also at increased risk of developing subacute sclerosing panencephalitis (SSPE), a rare measles complication that has a high fatality rate and may surface years after initial infection,” according to the experts.

US measles outlook is so bad health experts call for updating vaccine guidance Read More »

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Doctors report upticks in severe brain dysfunction among kids with flu

Doctors around the US have anecdotally reported an uptick of children critically ill with the flu developing severe, life-threatening neurological complications, which can be marked by seizures, delirium, hallucinations, decreased consciousness, lethargy, personality changes, and abnormalities in brain imaging.

It’s long been known that the seasonal flu can cause such devastating complications in some children, many with no underlying medical conditions. But doctors have begun to suspect that this year’s flu season—the most severe in over 15 years—has taken a yet darker turn for children. On February 14, for instance, health officials in Massachusetts released an advisory for clinicians to be on alert for neurological complications in pediatric flu patients after detecting a “possible increase.”

With the anecdata coming in, the Centers for Disease Control and Prevention analyzed all the data it has on neurological complications from flu this year and seasons dating back to 2010. Unfortunately, existing surveillance systems for flu do not capture neurological complications in pediatric cases overall—but they do capture such detailed clinical data when a child dies of flu.

An analysis of that data, published today in the CDC’s Morbidity and Mortality Weekly Report, can’t definitively say that this year is out of the norm. For one thing, the flu season is not yet over. But the data so far does suggest it may be one of the more severe seasons in the last 15 years.

Specifically, the CDC received reports of a severe neurological complication called influenza-associated acute necrotizing encephalopathy (ANE). ANE is a severe form of the more general category of influenza-associated encephalopathy or encephalitis (IAE), meaning brain dysfunction or inflammation from the flu.

When a child dies of the flu, clinicians are required to fill out a standardized case report form from the CDC, which collects a large variety of data, including complications. Encephalopathy or encephalitis are included as a checkbox on the form.

Between 2010 and February 8, 2025, 1,840 children died of the flu. Of those, 166 had IAE checked off as a complication. IAE was most prevalent in children aged 2 to 4 but affected children in all age groups under 18. More than half of the cases (54 percent) had no underlying medical conditions, and most (80 percent) were unvaccinated against the flu.

Doctors report upticks in severe brain dysfunction among kids with flu Read More »

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RFK Jr. promptly cancels vaccine advisory meeting, pulls flu shot campaign

Indefinite changes

Stat asked the HHS specifically about the Wild to Mild campaign as well as promotional campaigns for other vaccines, but an HHS spokesperson puzzlingly responded with a statement saying: “No, the CDC was not told to take down the flu vaccination campaign webpage,” which wasn’t what the outlet had asked about.

The statement went on to say: “Unfortunately, officials inside the CDC who are averse to Secretary Kennedy and President Trump’s agenda seem to be intentionally falsifying and misrepresenting guidance they receive.” NPR received the same statement.

Meanwhile on Thursday, The Washington Post reported that the HHS told the CDC to indefinitely postpone a meeting of its vaccine advisory committee (the Advisory Committee on Immunization Practices, or ACIP), which Kennedy has criticized. ACIP, comprised of independent experts, meets regularly to review and discuss vaccine safety and efficacy data and vote on recommendations.

ACIP was previously scheduled to meet February 26 to 28 to discuss a large number of vaccines, including those against meningitis, influenza, RSV, chikungunya, HPV, mpox, pneumococcal infections, Lyme disease, COVID-19, and CMV. An HHS spokesperson told the Post that the meeting was “postponed to accommodate public comment in advance of the meeting,” but there is no rescheduled date.

Leading medical experts and organizations, such as the American Medical Association, quickly sent a joint letter urging Kennedy to preserve the meeting. “Each ACIP meeting holds tremendous weight and relevance,” the letter states. ‘Infectious diseases are constantly evolving opponents; vaccines are among the best tools for constantly adapting and responding to the latest public health threats. … Making America healthy requires healthy discussion and timely, evidence-based decisions. This meeting should be no different.”

But, also on Thursday, Politico reported that Kennedy is preparing to remove ACIP members. And, the AP noted earlier that during a speech to HHS employees on Tuesday, Kennedy vowed to investigate the CDC’s childhood vaccine schedule, despite assuring senators prior to his confirmation that he would not make changes to it.

RFK Jr. promptly cancels vaccine advisory meeting, pulls flu shot campaign Read More »

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“The country is less safe”: CDC disease detective program gutted

The cadre of elite disease detectives at the Centers for Disease Control and Prevention is expected to be left in ruin today as the Trump administration continues to slash the federal workforce.

Many members of the CDC’s Epidemic Intelligence Service, EIS—a globally revered public health training program—were informed earlier Friday that they were about to be fired, according to reporting from Stat News. Multiple sources told CBS News that half of EIS officers are among the ongoing cuts.

The Trump administration is ousting thousands of probationary federal workers in a wide-scale effort to dramatically slim agencies.

The EIS is a two-year program filled with competitively selected, highly educated and trained experts. EIS officers are the ones deployed in critical public health situations, such as deadly outbreaks or bioterror attacks. The program has a long, rich history since its establishment in 1951, which includes contributing to the eradication of smallpox, among other achievements.

The deep cuts to the program have horrified those in the public health sphere.

“The country is less safe,” Dr. Anne Schuchat, a former top-ranking CDC official and alumna of the program, told CBS News. “These are the deployable assets critical for investigating new threats, from anthrax to Zika.”

“It’s almost beyond belief,” former CDC director Bill Foege told Stat. He noted that the EIS trainees were critical to stopping the spread of the disastrous West Africa Ebola outbreak of 2014–2016.

The cuts to EIS are just some of those that CDC is facing. CBS News reports that around 1,270 are being cut from the agency, which is around 10 percent of its staff.

“The country is less safe”: CDC disease detective program gutted Read More »

h5n1-testing-in-cow-veterinarians-suggests-bird-flu-is-spreading-silently

H5N1 testing in cow veterinarians suggests bird flu is spreading silently

Three veterinarians who work with cows have tested positive for prior infections of H5 bird flu, according to a study released today by the Centers for Disease Control and Prevention.

The finding may not seem surprising, given the sweeping and ongoing outbreak of H5N1 among dairy farms in the US, which has reached 968 herds in 16 states and led to infections in 41 dairy workers. However, it is notable that none of the three veterinarians were aware of being infected, and none of them worked with cows that were known or suspected to be infected with H5N1. In fact, one of them only worked in Georgia and South Carolina, two states where H5N1 infections in dairy cows and humans have never been reported.

The findings suggest that the virus may be moving in animals and people silently, and that our surveillance systems are missing infections—both long-held fears among health experts.

The authors of the study, led by researchers at the CDC, put the takeaway slightly differently, writing: “These findings suggest the possible benefit of systematic surveillance for rapid identification of HPAI A(H5) virus in dairy cattle, milk, and humans who are exposed to cattle to ensure appropriate hazard assessments.”

H5N1 testing in cow veterinarians suggests bird flu is spreading silently Read More »

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Judge orders Trump admin. to restore CDC and FDA webpages by midnight

“Irrational removal”

In his opinion, Bates cited the declarations from Stephanie Liou, a physician who works with low-income immigrant families and an underserved high school in Chicago, and Reshma Ramachandran, a primary care provider who relies on CDC guidance on contraceptives and sexually transmitted diseases in her practice. Both are board members of Doctors for America.

Liou testified that the removal of resources from the CDC’s website hindered her response to a chlamydia outbreak at the high school where she worked. Ramachandran, meanwhile, testified that she was left scrambling to find alternative resources for patients during time-limited appointments. Doctors for America also provided declarations from other doctors (who were not members of Doctors for America) who spoke of being “severely impacted” by the sudden loss of CDC and FDA public resources.

With those examples, Bates agreed that the removal of the information caused the doctors “irreparable harm,” in legal terms.

“As these groups attest, the lost materials are more than ‘academic references’—they are vital for real-time clinical decision-making in hospitals, clinics and emergency departments across the country,” Bates wrote. “Without them, health care providers and researchers are left ‘without up-to-date recommendations on managing infectious diseases, public health threats, essential preventive care and chronic conditions.’ … Finally, it bears emphasizing who ultimately bears the harm of defendants’ actions: everyday Americans, and most acutely, underprivileged Americans, seeking healthcare.”

Bates further noted that it would be of “minimal burden” for the Trump administration to restore the data and information, much of which has been publicly available for many years.

In a press statement after the ruling, Doctors for America and Public Citizen celebrated the restoration.

“The judge’s order today is an important victory for doctors, patients, and the public health of the whole country,” Zach Shelley, a Public Citizen Litigation Group attorney and lead counsel on the case, said in the release. “This order puts a stop, at least temporarily, to the irrational removal of vital health information from public access.”

Judge orders Trump admin. to restore CDC and FDA webpages by midnight Read More »

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Bird flu strain that just jumped to cows infects dairy worker in Nevada

However, the new Nevada case is notable because it marks the first time D1.1 is known to have jumped from birds to cows to a person. Moreover, D1.1 has proven dangerous. The genotype is behind the country’s only severe and ultimately fatal case of H5N1 so far in the outbreak. The death in the Louisiana case linked to wild and backyard birds was reported last month. The CDC’s statement added that the person had “prolonged, unprotected” exposure to the birds. The D1.1. genotype was also behind a severe H5N1 infection that put a Canadian teenager in intensive care late last year.

In a February 7 analysis, the USDA reported finding that the D1.1 strain infecting cows in Nevada has a notable mutation known to help the bird-adapted virus replicate in mammals more efficiently (PB2 D701N). To date, this mutation has not been seen in D1.1 strains spreading in wild birds nor has it been seen in the B3.13 genotype circulating in dairy cows. However, it was seen before in a 2023 human case in Chile. The CDC said it has confirmed that the strain of D1.1 infecting the person in Nevada also contains the PB2 D701N mutation.

The USDA and CDC both reported that no other concerning mutations were found, including one that has been consistently identified in the B3.13 strain in cows. The CDC said it does not expect any changes to how the virus will interact with human immune responses or to antivirals.

Most importantly, to date, there has been no evidence of human-to-human transmission, which would mark a dangerous turn for the virus’s ability to spark an outbreak. For all these reasons, the CDC considers the risk to the public low, though people with exposure to poultry, dairy cows, and birds are at higher risk and should take precautions.

To date, 967 herds across 16 states have been infected with H5N1 bird flu, and nearly 158 million commercial birds have been affected since 2022.

Bird flu strain that just jumped to cows infects dairy worker in Nevada Read More »

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Internet Archive played crucial role in tracking shady CDC data removals


Internet Archive makes it easier to track changes in CDC data online.

When thousands of pages started disappearing from the Centers for Disease Control and Prevention (CDC) website late last week, public health researchers quickly moved to archive deleted public health data.

Soon, researchers discovered that the Internet Archive (IA) offers one of the most effective ways to both preserve online data and track changes on government websites. For decades, IA crawlers have collected snapshots of the public Internet, making it easier to compare current versions of websites to historic versions. And IA also allows users to upload digital materials to further expand the web archive. Both aspects of the archive immediately proved useful to researchers assessing how much data the public risked losing during a rapid purge following a pair of President Trump’s executive orders.

Part of a small group of researchers who managed to download the entire CDC website within days, virologist Angela Rasmussen helped create a public resource that combines CDC website information with deleted CDC datasets. Those datasets, many of which were previously in the public domain for years, were uploaded to IA by an anonymous user, “SheWhoExists,” on January 31. Moving forward, Rasmussen told Ars that IA will likely remain a go-to tool for researchers attempting to closely monitor for any unexpected changes in access to public data.

IA “continually updates their archives,” Rasmussen said, which makes IA “a good mechanism for tracking modifications to these websites that haven’t been made yet.”

The CDC website is being overhauled to comply with two executive orders from January 20, the CDC told Ars. The Defending Women from Gender Ideology Extremism and Restoring Biological Truth to the Federal Government requires government agencies to remove LGBTQ+ language that Trump claimed denies “the biological reality of sex” and is likely driving most of the CDC changes to public health resources. The other executive order the CDC cited, the Ending Radical And Wasteful Government DEI Programs And Preferencing, would seemingly largely only impact CDC employment practices.

Additionally, “the Office of Personnel Management has provided initial guidance on both Executive Orders and HHS and divisions are acting accordingly to execute,” the CDC told Ars.

Rasmussen told Ars that the deletion of CDC datasets is “extremely alarming” and “not normal.” While some deleted pages have since been restored in altered versions, removing gender ideology from CDC guidance could put Americans at heightened risk. That’s another emerging problem that IA’s snapshots could help researchers and health professionals resolve.

“I think the average person probably doesn’t think that much about the CDC’s website, but it’s not just a matter of like, ‘Oh, we’re going to change some wording’ or ‘we’re going to remove these data,” Rasmussen said. “We are actually going to retool all the information that’s there to remove critical information about public health that could actually put people in danger.”

For example, altered Mpox transmission data removed “all references to men who have sex with men,” Rasmussen said. “And in the US those are the people who are not the only people at risk, but they’re the people who are most at risk of being exposed to Mpox. So, by removing that DEI language, you’re actually depriving people who are at risk of information they could use to protect themselves, and that eventually will get people hurt or even killed.”

Likely the biggest frustration for researchers scrambling to preserve data is dealing with broken links. On social media, Rasmussen has repeatedly called for help flagging broken links to ensure her team’s archive is as useful as possible.

Rasmussen’s group isn’t the only effort to preserve the CDC data. Some are creating niche archives focused on particular topics, like journalist Jessica Valenti, who created an archive of CDC guidelines on reproductive rights issues, sexual health, intimate partner violence, and other data the CDC removed online.

Niche archives could make it easier for some researchers to quickly survey missing data in their field, but Rasmussen’s group is hoping to take next steps to make all the missing CDC data more easily discoverable in their archive.

“I think the next step,” Rasmussen said, “would be to try to fix anything in there that’s broken, but also look into ways that we could maybe make it more browsable and user-friendly for people who may not know what they’re looking for or may not be able to find what they’re looking for.”

CDC advisers demand answers

The CDC has been largely quiet about the deleted data, only pointing to Trump’s executive orders to justify removals. That could change by February 7. That’s the deadline when a congressionally mandated advisory committee to the CDC’s acting director, Susan Monarez, asked for answers in an open letter to a list of questions about the data removals.

“It has been reported through anonymous sources that the website changes are related to new executive orders that ban the use of specific words and phrases,” their letter said. “But as far as we are aware, these unprecedented actions have yet to be explained by CDC; news stories indicate that the agency is declining to comment.”

At the top of the committee’s list of questions is likely the one frustrating researchers most: “What was the rationale for making these datasets and websites inaccessible to the public?” But the committee also importantly asked what analysis was done “of the consequences of removing access to these datasets and website” prior to the removals. They also asked how deleted data would be safeguarded and when data would be restored.

It’s unclear if the CDC will be motivated to respond by the deadline. Ars reached out to one of the committee members, Joshua Sharfstein—a physician and vice dean for Public Health Practice and Community Engagement at Johns Hopkins University—who confirmed that as of this writing, the CDC has not yet responded. And the CDC did not respond to Ars’ request to comment on the letter.

Rasmussen told Ars that even temporary removals of CDC guidance can disrupt important processes keeping Americans healthy. Among the potentially most consequential pages briefly removed were recommendations from the congressionally mandated Advisory Committee on Immunization Practices (ACIP).

Those recommendations are used by insurance companies to decide who gets reimbursed for vaccines and by physicians to deduce vaccine eligibility, and Rasmussen said they “are incredibly important for the entire population to have access to any kind of vaccination.” And while, for example, the Mpox vaccine recommendations were eventually restored unaltered, Rasmussen told Ars that she suspects that “one of the reasons” preventing interference currently with ACIP is that it’s mandated by Congress.

Seemingly ACIP could be weakened by the new administration, Rasmussen suggested. She warned that Trump’s pick for CDC director, Dave Weldon, “is an anti-vaxxer” (with a long history of falsely linking vaccines to autism) who may decide to replace ACIP committee members with anti-vaccine advocates or move to dissolve ACIP. And any changes in recommendations could mean “insurance companies aren’t going to cover vaccinations [and that] physicians will not recommend vaccination.” And that could mean “vaccination will go down and we’ll start having outbreaks of some of these vaccine-preventable diseases.”

“If there’s a big polio outbreak, that is going to result in permanently disabled children, dead children—it’s really, really serious,” Rasmussen said. “So I think that people need to understand that this isn’t just like, ‘Oh, maybe wear a mask when you’re at the movie theater’ kind of CDC guidance. This is guidance that’s really fundamental to our most basic public health practices, and it’s going to cause widespread suffering and death if this is allowed to continue.”

Seeding deleted data and doing science to fight back

On Bluesky, Rasmussen led one of many charges to compile archived links and download CDC data so that researchers can reference every available government study when advancing public health knowledge.

“These data are public and they are ours,” Rasmussen posted. “Deletion disobedience is one way to fight back.”

As Rasmussen sees it, deleting CDC data is “theft” from the public domain and archiving CDC data is simply taking “back what is ours.” But at the same time, her team is also taking steps to be sure the data they collected can be lawfully preserved. Because the CDC website has not been copied and hosted on a server, they expect their archive should be deemed lawful and remain online.

“I don’t put it past this administration to try to shut this stuff down by any means possible,” Rasmussen told Ars. “And we wanted to make sure there weren’t any sort of legal loopholes that would jeopardize anybody in the group, but also that would potentially jeopardize the data.”

It’s not clear if some data has already been lost. Seemingly the same user who uploaded the deleted datasets to IA posted on Reddit, clarifying that while the “full” archive “should contain all public datasets that were available” before “anything was scrubbed,” it likely only includes “most” of the “metadata and attachments.” So, researchers who download the data may still struggle to fill in some blanks.

To help researchers quickly access the missing data, anyone can help the IA seed the datasets, the Reddit user said in another post providing seeding and mirroring instructions. Currently dozens are seeding it for a couple hundred peers.

“Thank you to everyone who requested this important data, and particularly to those who have offered to mirror it,” the Reddit user wrote.

As Rasmussen works with her group to make their archive more user-friendly, her plan is to help as many researchers as possible fight back against data deletion by continuing to reference deleted data in their research. She suggested that effort—doing science that ignores Trump’s executive orders—is perhaps a more powerful way to resist and defend public health data than joining in loud protests, which many researchers based in the US (and perhaps relying on federal funding) may not be able to afford to do.

“Just by doing things and standing up for science with your actions, rather than your words, you can really make, I think, a big difference,” Rasmussen said.

Photo of Ashley Belanger

Ashley is a senior policy reporter for Ars Technica, dedicated to tracking social impacts of emerging policies and new technologies. She is a Chicago-based journalist with 20 years of experience.

Internet Archive played crucial role in tracking shady CDC data removals Read More »

sick-right-now?-flu-is-resurging-to-yet-a-higher-peak-this-season.

Sick right now? Flu is resurging to yet a higher peak this season.

Currently, flu activity is categorized as “very high” in 29 states, and “high” in 15. States in the South are ablaze with flu. Louisiana, Tennessee, and South Carolina are at the highest “very high” level. But parts of the Northeast corridor are also seeing extremely high activity, including Massachusetts, New Hampshire, New Jersey, and New York City.

Credit: CDC

As often is the case in flu seasons, the age group hardest hit this year are children ages 0 to 4. The CDC recorded 16 pediatric deaths linked to flu in week 4 of the season, bringing the season’s total pediatric deaths to 47.

Overall hospitalizations are up. The Centers for Disease Control and Prevention estimates that there have been at least 20 million illnesses, 250,000 hospitalizations, and 11,000 deaths from flu so far this season. About 44 percent of US adults have gotten their flu shot, far below the public health goal of 70 percent.

Laboratory surveillance of influenza cases in week 4 indicates that nearly all of the cases are from influenza A viruses, about an even split between H1N1 and H3N2, which has been the case over the course of the season. Around 2 percent of cases were the influenza B Victoria lineage.

Sick right now? Flu is resurging to yet a higher peak this season. Read More »